In this episode, we discuss:
The effect of Lulu’s seizure medication, and her subsequent hospitalization several weeks later. We also discuss why her experience with RSV didn’t follow the normal progression, and what it felt like to be in the hospital for 10 days. Finally, we wrap up with some thoughts on how that experience shaped our perception of Lulu, and what our realization was after it was over.
Some before/after photos of Lulu on steroids:
About a month before her Infantile Spasms. Note how small her face is!
A few weeks pre-seizure, rolling off her mat!
A few weeks pre-seizure. This smile was typical for Lulu at that time.
In the hospital with RSV, while still on steroids for Infantile Spasms. This blank look was typical for that period.
A few weeks after getting out the hospital.
After several months, she regained enough strength to lift her head again, but this was the closest we got to a smile until about June of 2016.
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