Lulu pre-Infantile Spasms
Lulu about 2 weeks after her first seizure
In this episode, we discuss:
Lulu’s first winter, and the beginning of some fairly serious health problems that started when she was about six months old. On December 31st, 2015, she had her first seizure, and we talk about the process we went through to get the diagnosis confirmed. Sharon talks about the first time she ever felt like she knew better than the doctor, and why we felt so powerless.
Links we mention in this episode:
The article from noahsdad.com, where he details the symptoms of infantile spasms, and includes a video of a baby having a seizure. This was, by far, the most helpful resource to us when we were unsure about Lulu’s diagnosis. It’s very comprehensive and worth a read for any parents who need information on Infantile Spasms.
The article from the National Institute of Health that calls Infantile Spasms “catastrophic childhood epilepsies”.
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