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We are just two regular parents who had something unexpected happen to us: we were surprised to have a child with Down syndrome, and ended up getting a Sensory Processing Diagnosis for our son a year later. Our journey has been wild, but wonderful. We want to share our story, and hear yours too!

Episode 19 - Celebrating World Down syndrome Day

A Few Thoughts from Sharon:

We are so excited for World Down syndrome Day! Truthfully, we didn’t do anything super fun or exciting (although we are all rocking our John’s crazy socks!) We had flash flood warnings in Virginia today, and so my dreams of trying to do some sort of activity (walking, jogging….some other level of high intensity that would cause me to remember how out of shape I am…) were sort of swept away with the rain. However, we have loved seeing all of the pictures and faces of all of the people we are connected to in the Down syndrome community. It’s hard to believe that 4 years ago, I knew exactly one person with Down syndrome. It’s like there was a hole in our life that we didn’t even know existed!

I think the most surprising thing about having a child with Down syndrome is how freeing it’s been. Because we’ve been through some rough spots, it’s caused us to really celebrate and live in the moment while we have it. And Lulu’s disposition is forever peaceful, cheerful, and sunny. She doesn’t live in worry, and I am guessing she never will—it’s just not her way. In contrast, by nature I am someone who tends to spend my time trying to find ways to avoid the next (unlikely) disaster scenario. Her presence in my life has been surprisingly calming; despite her 3 year old bossy tendencies, she has a deeply compassionate soul. And because Max is so much like me (I am sorry, Max!), I routinely see her having the same effect on him.

Happy WDSD to all!

In today’s podcast, we discuss:

World Down syndrome Day, and how we will be celebrating! We also give an update on Lulu’s current school situation, and why I put that in the somewhat-lengthy category of things that almost gave me a breakdown. ;) We also talk a little about some other events going on the Down syndrome community today, and Steve talks about the time he met Rick Smith from
As a bonus, be sure to listen all the way to the end (after the music stops) to get a little appearance from the queen herself. Enjoy!!

Thanks for listening!

Thanks for tuning in! If you have something you would like to share (like your favorite stories from 2018!), you can leave a comment below, send me an email, or find me on Instagram at @specialstorey.

Also, please rate and review the show on iTunes here! It really helps others find the show, and we’ll give you a shout out on the podcast! It’s our little way of saying thank you.

Episode 20 - Lulus Weekly Special Ed and Preschool Schedule

Episode 18 - Easy Sensory Processing Tips and Tricks